Black Health
Mental Health

DSM-5-TR added prolonged grief in 2022. Black families grieve differently.

Dr. Mia Washington PhD, Licensed Psychologist
8 min read
A Black man sits across from a female psychologist during a counseling session, both engaged and calm.
A Black man sits across from a female psychologist during a counseling session, both engaged and calm. Photo: Alex Green / Pexels
In March 2022, the American Psychiatric Association added prolonged grief disorder to the DSM-5-TR, codifying a diagnosis for bereaved adults whose acute grief persists at least 12 months. The 2021 validation paper by Prigerson and colleagues in World Psychiatry set the threshold around yearning, identity disruption, and functional impairment. For Black families, whose grief practices center communal witnessing, this new diagnostic frame sits uneasily against a tradition that already answers what the research keeps finding: social support is the strongest adaptive factor in bereavement.

In March 2022, the American Psychiatric Association added prolonged grief disorder (PGD) to the DSM-5-TR, the first new diagnosis since the manual's 2013 edition. The criteria, validated by Holly Prigerson and colleagues in World Psychiatry in 2021, require that grief persists at least 12 months past the death for adults, with daily yearning or preoccupation, identity disruption, and clinically significant impairment. The criteria were validated across bereaved samples at Yale, Utrecht, and Oxford. None of the three validation cohorts centered Black Americans.

Prolonged grief disorder requires 12 months of symptoms for adults

The diagnosis is narrow on purpose. The bereaved person must show intense longing for the deceased or preoccupation with thoughts of the deceased most days, nearly every day, for at least a month, after a minimum of 12 months since the death (6 months for children and adolescents). Alongside that, at least three of eight symptoms have to be present: identity disruption, marked disbelief, avoidance of reminders, intense emotional pain, difficulty reintegrating into relationships or activities, emotional numbness, a sense that life is meaningless, and intense loneliness. The symptoms must exceed what is typical in the mourner's culture, religion, or age group, and they must cause functional impairment. Prigerson and colleagues (2021) built the PG-13-R scale to measure these criteria, and its temporal stability (r = 0.86) and internal consistency (Cronbach's alpha 0.83 to 0.93 across three datasets) support the diagnostic threshold.

The cultural caveat inside the DSM text matters. A diagnosis that depends on what is typical in the mourner's culture depends on clinicians knowing that culture. Most clinicians treating bereaved Black patients were not trained on Black grief. That gap is where the clinical frame and the community frame pull apart.

Shear's complicated grief treatment works, but its trials skew white

The strongest evidence base for treating persistent grief comes from M. Katherine Shear's randomized trials of complicated grief treatment (CGT), a 16-session protocol that borrows from interpersonal psychotherapy and prolonged exposure. The first RCT, published in JAMA in 2005, randomized 95 bereaved adults and found CGT produced higher response rates and faster time to response than standard interpersonal psychotherapy. The 2014 extension in older adults, published in JAMA Psychiatry, randomized 151 adults aged 50 and older and recorded a 70.5 percent response rate for CGT versus 32.0 percent for interpersonal psychotherapy (p < .001). The 2016 trial, also in JAMA Psychiatry, added a citalopram arm in 395 bereaved adults and found the psychotherapy drove the grief-symptom improvement. Citalopram did not.

Read the Shear papers carefully and the limitation is explicit. The 2014 sample was, in the authors' own words, predominantly female, white, and highly educated. That is a fact about the evidence base, not a knock on the therapy. CGT's effect sizes are real; they were just measured in a population that is not representative of Black American bereavement. Extrapolating a 70.5 percent response rate from a mostly-white cohort to Black patients without caveating is the kind of move the peer reviewers flagged and the clinicians repeating the statistic too often drop.

Bonanno's resilience research found most bereaved adults do not develop chronic grief

The clinical literature's other pillar is George Bonanno's resilience research. His 2004 paper in American Psychologist argued that the field had underestimated how many bereaved adults show only minor, transient disruption after a death. Across prospective cohorts, roughly half of bereaved adults track a resilient trajectory: stable functioning, low symptom levels, no clinical-threshold distress at 6 or 18 months. A smaller subset tracks chronic grief, and it is that subset the DSM-5-TR diagnosis targets. The resilient majority is not in denial. They are grieving and functioning at the same time.

Bonanno's cohorts, like Shear's, skewed white. The conceptual point, however, holds regardless of sample composition: clinical attention has to separate the smaller subset who need structured treatment from the larger population who will grieve hard and carry on without it. Misreading the latter as the former medicalizes ordinary mourning, and pushing ordinary mourning into a diagnostic box it does not fit is an expensive error in communities that already distrust the psychiatric system.

Stroebe and Schut's dual-process model predicts what Black grief already does

Margaret Stroebe and Henk Schut's 1999 dual-process model in Death Studies reframed grieving as oscillation between loss-oriented coping (confronting the reality of the death, sifting memories, feeling the pain) and restoration-oriented coping (attending to new roles, rebuilding routines, re-engaging with the world). The model predicts that bereaved people who can oscillate between both modes, rather than camp in either one, adapt better. Two decades of research in that tradition reinforce social connection as the mechanism that supports oscillation.

Place that model next to what Black families already do when a loved one dies. The homegoing service carries loss-oriented work into public: naming the person, telling stories, singing songs that hold the ache. The repast shifts the room toward restoration: a meal, neighbors meeting, relatives who have not seen each other in years laughing over a plate. The weeks that follow bring casseroles, phone calls, church visits, and a community that does not disappear after the burial. Stroebe and Schut described oscillation as a clinical insight. Black grieving practice has treated it as the design of the ritual for generations.

Cumulative loss is the piece the individual-focused models miss

What the DSM-5-TR frame and the Shear protocol were not built to measure is cumulative community loss. A Black family that loses a grandmother in 2023 may have lost a cousin to gun violence in 2020, an uncle to uncontrolled hypertension in 2018, and a neighbor to a maternal death in 2016. Clinical models treat grief as one death at a time. Community grief does not arrive that way. A bereaved patient who meets PGD criteria at 14 months past a single death may be carrying three earlier losses that never got their own 12 months. The clinician who does not ask about the cumulative load diagnoses the last loss and misses the stack.

This is where the cultural-caveat clause in the DSM-5-TR either does work or fails. A clinician who takes it seriously asks what the patient's family and community treat as typical mourning, asks about prior losses inside the same year or five years, and distinguishes a grief response that is atypical inside the patient's community from a grief response that is only atypical against a white, middle-class baseline. A clinician who ignores it pathologizes communal practice and risks over-diagnosing a population whose mourning was already disciplined, already held, and already oscillating the way the research says it should.

What to do with this as a bereaved Black patient or family member

If you lost someone close more than a year ago and your daily functioning has not returned, the PGD criteria are a screening prompt, not a verdict. Ask a therapist trained in CGT (the Columbia Center for Prolonged Grief lists clinicians at prolongedgrief.columbia.edu) whether the protocol fits your situation. Ask whether they have treated Black patients and whether they will ask about cumulative loss, not just the most recent death. If your grief is hard but you are still showing up to work, to family, to church, and the ache has not shortened your functioning, you are likely doing what Bonanno's data predicted most bereaved adults do.

If you are looking for a culturally competent Black therapist to work through a loss, the Therapy for Black Girls directory at therapyforblackgirls.com and the Therapy for Black Men directory at therapyforblackmen.org are the two best-maintained referral lists. The blackhealth.org provider directory also lists Black clinicians who take bereavement referrals. Bring the questions above to the first session. Ask the clinician what framework they use, whether they know CGT, and how they think about cumulative community loss. A therapist who cannot answer those is not the right fit.

Medical Disclaimer

This content is for informational and educational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider with questions about a medical condition.

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