Black Health

Sickle Cell

Sickle cell resources by state

Every state has a page covering its SCDAA chapter, Medicaid coverage of hydroxyurea and gene therapy, newborn screening history, and comprehensive centers serving the state.

Every U.S. state has its own SCDAA chapter coverage, newborn-screening history, and Medicaid coverage posture on the new CRISPR gene therapies. These per-state pages document all three, plus cross-link our hematology provider directory, our FQHC directory, and our Medicaid navigator for the same state.

All 50 states & DC

Alabama

SCDAA of North Central Alabama

Alaska

No SCDAA chapter

Arizona

SCDAA of Arizona

Arkansas

Sickle Cell Support Services of Arkansas

California

Cayenne Wellness Center (SCDAA of California)

Colorado

Sickle Cell Treatment and Research Center (Colorado)

Connecticut

Citizens for Quality Sickle Cell Care (CT)

Delaware

SCDAA of Delaware Valley

District of Columbia

SCDAA — National Capital Area

Florida

Sickle Cell Disease Association — Florida

Georgia

SCDAA — Atlanta

Hawaii

No SCDAA chapter

Idaho

No SCDAA chapter

Illinois

SCDAA — Illinois

Indiana

Martin Center Sickle Cell Initiative

Iowa

No SCDAA chapter

Kansas

Uriel E. Owens Sickle Cell Disease Association (KS/MO)

Kentucky

SCDAA — Kentuckiana

Louisiana

SCDAA — Louisiana Chapter

Maine

No SCDAA chapter

Maryland

SCDAA — National Capital Area

Massachusetts

SCDAA — Boston (New England Region)

Michigan

SCDAA of Michigan

Minnesota

Sickle Cell Foundation of Minnesota

Mississippi

Mississippi SCDAA Chapter

Missouri

SCDAA of Greater St. Louis

Montana

No SCDAA chapter

Nebraska

Sickle Cell Disease Foundation of Nebraska

Nevada

Nevada Sickle Cell Foundation

New Hampshire

No SCDAA chapter

New Jersey

SCDAA — New Jersey Chapter

New Mexico

No SCDAA chapter

New York

Sickle Cell Thalassemia Patients Network (NYC)

North Carolina

SCDAA — Piedmont Chapter (NC)

North Dakota

No SCDAA chapter

Ohio

SCDAA — Northwest Ohio (and Central Ohio chapter)

Oklahoma

Supporters of Families with Sickle Cell Disease (Oklahoma)

Oregon

Sickle Cell Anemia Foundation of Oregon

Pennsylvania

SCDAA — Philadelphia / Delaware Valley

Rhode Island

No SCDAA chapter

South Carolina

James R. Clark Memorial Sickle Cell Foundation

South Dakota

No SCDAA chapter

Tennessee

Sickle Cell Foundation of Tennessee

Texas

SCDAA — East Texas (Houston)

Utah

No SCDAA chapter

Vermont

No SCDAA chapter

Virginia

SCDAA — Central Virginia

Washington

Central City Sickle Cell Foundation (WA)

West Virginia

No SCDAA chapter

Wisconsin

SCDAA — Wisconsin

Wyoming

No SCDAA chapter